4 months old today! Yesterday I left at noon to go to Scottish Rite and didn't arrive back home until 6:30. Such a long day. Unfortunately it isn't uncommon to spend large portions of my day at appointments for Robbie and/or myself these days. Here's his update:
Robbie had his 1st x-rays of his left hand. Good news is they showed he has both an elbow and wrist joint. The doctor is revising his working diagnosis from ulnar longitudinal deficiency to arthrogryposis (basically stiff joints) and possibly amyoplasia (Lack of muscular development and growth with contracture and deformity at most joints. Robbie does have the internally rotated shoulder, extended elbow, ulnar flexed wrist, and displacement of knees). We have been given the green light to start doing stretches to improve range of motion, which made Stevan Autrey Duke happy. Robbie may need surgery anyway, but it's worth a try.
The lower extremity doctor said as soon as his braces are taken off he kicks them and they automatically dislocate. She had x-rays done while wearing the braces that showed his legs weren't dislocated in them, but also not in the correct position. On Monday the neurologist is going to give his thighs each a shot of Botox to get them to relax, then take molds of his legs in the correct position and make new braces. He may need surgery on his legs also, but she is still hopeful he will be able to walk someday.
If I'm being honest it's hard to see my baby not rolling over or hitting typical milestones of a 4 month old. I find my time and energy consumed with a long list of things I took for granted with Dylan and Colton. But for now I will celebrate his little victories and create his own list of milestones. He's sure nailed smiling and chatting!
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